Apparently I am not reacting well to my chemo tablets, got complete blood panel done today at doctor visit and liver number was WAY too high. It was slightly elevated in the hospital but they didn't find any other damage or indicators. So doctor called after getting the results and said to stop the kisqali and pravastatin ( cholesterol med) got me a prescription for prednisone and will check my blood again in a week.
I guess that's one explanation why things have been going so wonky. My glucose is consistently high as well, fasting or not fasting but that hasn't been mentioned yet. She put in a referral for the GI doctor and a nudge to the cardio doctor as well. Got my new phone number dialed into my accounts other than the grocery store which is a pain to set up so not going to bother.
We came home from the doctor because Jon needed to eat something and I needed to use the bathroom. After that I was Hungry which was a very good sign because I hadn't been that hungry in a long time. Had a bowl of leftover chicken and pasta and apple bits in yogurt then got sleepy and laid down at 3. I passed out. Woke up vaguely once when a notification went off but went right back to sleep. Didn't really wake up until doctor called at 4:30.
So yeah, supposed to be eating high potassium foods which I have very little of in the house, very little money and new money won't be coming for another 10 days minimum. Running low on toilet paper again as well. Tried to use my OTC benefits card at CVS but apparently it's not recognizing it for the morning/bedtime pill minder and generic mucinex I needed. It's supposed to work on things like oral care (but maybe not regular toothpaste) and pill minders. Just downloaded the complete list and it is not as many items as before. Very specific items in a particular category, not many generics so it is a less than helpful benefit this time around. So I have to write down the EXACT product name for what I want or pay out of pocket.
I know so many others have constant health issues that are part of their life forever, this is new to me and I'm hoping that in another year I will be much healthier and stronger. 15 years ago I told a doctor that I have been basically healthy and good all my life, so when something happens, it's catastrophic. So I'm a bit lower energy today and that is explained with wonky numbers again. Right now I'm really cold and have my hoodie and gloves on with a double shirt layer on underneath. It's not my imagination considering it is 60 degrees outside and will get down into the 40's tonight. Been wearing socks to bed and finally convinced Jon to wash the brushed cotton sheets that had been in the hamper for over a year, What a difference!
So steroids for a month, blood tests every week, dr appointments coming up next month and after and hopefully some improvement. I just want to eat 'normal' food! Rolled tacos, regular beef tacos.. something anything with flavors.
okay it is now 7:15 and will go see what else I can do before bedtime.
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