Didn't sleep very well last night, it was too warm and was tired but couldn't get to sleep well. Tried to lay as prone as possible but after about five minutes couldn't stand it anymore so propped up the pillows as best I could. After only two hours and waking up twice to the feeling I was suffocating/choking had to rearrange pillows again and sit up more. I was probably snoring but have also noticed my eustacian tube area and ears are being funky. One thing that the doctor said in his notes after the consult was that my thyroid seemed to be enlarged. You may not remember the first time I had cancer when they did the MRI they said it was likely a water cyst, a year later and it was cancer. I am now thinking that the nodes on my thyroid are likely that situation as well. I'm also not wearing either of my bras because they are in such ratty condition they're useless. The divot in my right breast has indeed been 'oozing' I just never noticed it because it was likely getting caked over wearing a bra. So I'm putting neosporin and a bandaid on it now and it is looking better around the edges. There was a red ring around the area and since it's going away I am assuming that was from the biopsy.
(ducks...docs...got it?)
Got a call from imaging for my breast MRI and they had an opening for tomorrow (Saturday!) in the afternoon at the Santee location thankfully! That will save on gas for sure. I just now got a call from my primary doctor for the ER follow up which the only opening is June 18, all well and good really since I'll likely be back to normal by then. Right? She's likely in the loop about everything going on but I need to ask someone about my cataract consult at the end of the month and whether that is going to be delayed/postponed indefinitely.
I am so eternally grateful going through all this with an incredible interface between the doctors and the web app. No sooner do I get off the phone and get a notification there's a message for me on the app. No more having to hand enter appointments and doctor notes on a calendar or keeping track of it on my phone, it's all there. I get reminded a week before an appointment to do a pre-check in and make sure everything is up to date.
Wanted to also add some things that were in the doctor notes that have me particularly anxious.
"The top priority now is to determine if she has distant metastatic disease. Based on her PET/CT results, I have ordered a CT-guided biopsy of the lesion in the right iliac bone. If she has stage 4 disease, she will need systemic therapy. If disease is determined to be localized to the skin of the right chest wall, she will need a wide excision, explantation of the existing implant, placement of a tissue expander (if she so desires) and XRT."
Iliac is the big wing shape hip bone and the systemic therapy could be chemo and he said he hoped that will just melt everything away, XRT is radiation treatment so with my luck as bad as this sounds, I will be sick as a dog for months and likely be on pill treatment for the remainder of my life (however long that may be).
Have not gotten any call about the biopsy yet and when I do I will send out a 'call' for transportation help. It's close to the end of the school year so hoping that Amber will be able to help out but if not, will ask within Sharp if there is a transport company they contract with for doing that.
If people who follow this blog could message me to make sure it's getting through please? If I don't hear from anyone I'll change it so it goes out through an email list.
Funny note: When we went to get my foot x-rayed and Jon was letting me lean on him I had to say it in a southern accent: 'Thank you for your support'. If you know, you know. He had to stop walking and lean on one of the posts he was laughing so hard.
"Of all the things at risk, the loss of an objective reality is perhaps the most dangerous." - Andor S2, Mon Mothma's speech.
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