Good news on two fronts; one, the neck biopsy is negative so we're in the clear for that and two, the genetic screening/testing also came back negative/clear for genetic markers. So yay for me! We only have my right boob to get taken care of.
So right now trying to connect with my surgeon to discuss what's coming up next but left a message for him on the website saying that I got his phone message. He called me while I was in the shower. Go figure.Clarification in regards to the current world/country status. I sound like I'm panicking but really am just very anxious and angry. I have heard from Jon many times that he had to learn to respond not react from his time being a beat cop in New York and then in the medical field. I have a hard time doing that and tend to fall back on the old adage "When in danger or in doubt, run in circles, scream and shout." (which looking it up discovered it is attributed to the navy and possibly The Caine Mutiny'.)
After I panic and get all that out of my system I can look at the situation clearly and then formulate a plan. When it's something that I am in control of to a degree (car is still sitting in it's parking spot because no one including myself has the money to get it towed somewhere and have it diagnosed). More times than I can count I have had a logical plan or method of doing something and due to various circumstances and other people that are involved my suggestion is either ignored or I'm never given the opportunity to present it until after the fact. When it is now too late, damage is done or course can't be corrected.
I love Jon to the moon and back and would take a bullet for him as well but sometimes he is such a 'guy' that I can't get through to his brain. He needed to pick up his meds refill on all four things and we had just enough money to do that as well as having fare loaded on our transit cards. So he was going to just wait until the first and wouldn't tell me whether he had enough to last that far. SIGH I said, it's a chore but we can take the bus to the trolley and walk to the CVS and get your meds. He reluctantly agreed and we set off for our transit adventure. I ranted about it before and this seemed a fairly straightforward trip.
Well.... we got to the main transit center no problem, the original route had us stopping at a station almost a half mile from the main station. I thought that was rather odd and knew it was likely another stupid routing thing. So we got up to the station and I noticed one of the tracks was blocked, not noticing a third track that was for the short line we needed (again inserting trying not to 'bully' Jon about what we needed to do and feeling unaware of what was actually going on). So we both came to the conclusion that maybe the reason why the bus had us stop at the other station was because it doesn't go this far right now. It was a straight walk up the road (in full sun mind you but a nice breeze blowing) so we headed off... and then the trolley we needed pulled into the station. Jon said, let's just keep going. Wellllll neither of us have walked that much since Disneyland and Comicon so hips and feet were not happy at all and of course we were hot and sweaty but at least we got some exercise right?
Got to our destination no problem got his meds (Thank you Medicare!) that only came to $8 and being exhausted and hot just came straight back home. Not until hours later did he mention that his meds have a sun exposure warning on them.
I was so angry with him but had to be calm and not even jokingly try to smack him due to his abuse history from his dad. I told him in a very firm voice that next time we have to go out in the sun for any length of time we bring an umbrella. Luckily no adverse reactions other than a bit red on the back of his neck but still, that was a risk that he should not have taken. I've told him multiple times that if I say something to pay attention. He admits to being hard headed and not sounding weak when he's not feeling good.So no one ever listens to me or gives me a straight answer when I need one. It's one of the reasons why I am so angry at the current administration. I have a 'passionate dislike' for blatant liars and double talkers that can't answer a simple question with out giving an entire word salad explanation that never answers the question. Seriously. We haven't watched the news since January and only started recently due to the Middle East situation. The biggest problem is, feeling so helpless to do anything other than protest and spreading truth and facts. Feels like it's not enough when you want to go up to someone kick their ass and toss them into the ocean.
So there, on topic, side topic and explanation. As soon as I get to chat with my surgeon I'll have more news about what's coming up next.
No comments:
Post a Comment